How We Can Help
Huntington’s Disease Treatment Information
Huntington’s disease impacts you and your family in different ways over many years. We are here to guide you and your family toward the best care plans for your condition.
- Genetic testing. When you are diagnosed with Huntington’s disease, it is possible that other family members will now be considered at risk for inheriting the genetic mutation that causes the disease. We can test family members to see if they carry the abnormal Huntington’s gene. Test results may be an aid to family planning and long-term care planning. We follow national and international testing protocols including a neurological exam, pretest counseling and results given in person.
- Genetic counseling. If desired, an expert in genetics can talk with you and your family members about the inheritance of HD and about whether or not to pursue genetic testing. You will have the opportunity to discuss the emotional and practical impact on your lives and learn more about the disease and its progression.
- Medicines. There are treatments available to minimize the abnormal behaviors and movements that come with Huntington’s disease. For example. your physician may prescribe dopamine blockers to reduce these symptoms. Other medicines, like amantadine and tetrabenazine, can help control extra movements.
- Neurological rehabilitation. When you have Huntington’s disease, you need to maintain muscle control for movements and speech. Our team of physical, occupational therapists, dietitians and others work with you and your family to give you the best quality of life possible.
- Social worker. A key part of your care team is the social worker at our Huntington’s disease clinic. The social worker can assist in many different ways to help you access services, apply for disability when you can no longer work and help you and your family with home care or nursing home placement, if needed.
- Access to clinical trials. As a participant in the international Huntington Study Group, our physicians and patients take part in many multisite research efforts. We also conduct our own research studies with the Indiana University School of Medicine.
- Support groups. Dealing with the effects of Huntington’s disease can be stressful and difficult on you and your family. You can find support and help at one of many support groups in your area.
Huntington’s Disease Locations & Physicians
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Huntington’s Disease Support Services
Learn more about Huntington’s disease treatments at these websites:
A Sampling of Huntington’s Disease Support Services
Huntington Study Group
This organization is comprised of international clinical researchers who are dedicated to seeking treatments for those who are diagnosed with Huntington’s disease.
This website provides Huntington’s disease research news to patients, written by scientists in easy-to-understand language.
National Institute of Neurological Disorders and Stroke
This division of the National Institutes of Health provides patient information about treatments, research and clinical trials.
Genetics home reference
This service of the U.S. National Library of Medicine offers information and links to additional resources about Huntington’s disease.
Huntington’s Disease Society of America
This nonprofit offers education, advocacy and research support to find a cure for Huntington’s disease.