Riley Hospital for Children Hematology/Oncology at Indiana University Health offers a dedicated program for long term survivors of childhood cancer.
Approximately 75 percent of children who are diagnosed with cancer today are expected to become survivors of their illness. It is now estimated that 1 in 900 young adults are survivors of childhood cancer.
The Childhood Cancer Survivor Program is designed to help meet the unique needs of this growing population.
Special Needs of Childhood Cancer Survivors
It is important for survivors to be knowledgeable about their cancer diagnosis and the treatment they received. This will enable them to become advocates for appropriate follow-up care across their lifespan.
Childhood cancer and its treatment may result in medical problems that become apparent months or years after therapy has stopped. These are called late effects. Surveillance and early intervention for late effects is important in maintaining the good health of the survivor.
Some survivors of childhood cancer may experience difficulties in gaining an education or employment, or in obtaining insurance, or simply in adjustment to life after treatment. Knowing survivors’ legal rights and ways to access available resources can help the childhood cancer survivor accomplish life goals.
Services Available Through the Survivor Program
- Complete treatment summary
- Education about disease and potential for late effects
- Risk assessment for late effects
- Screening for possible late effects of cancer and therapy
- Future surveillance recommendations
- Review of research protocol outcomes and impact on current treatment approaches
- Psychosocial support
- Education counseling
- Aid in securing proper healthcare and life insurance
- Referral to specialists, as needed
- Assistance with transitioning health care to adult medical providers
- Support in accessing current survivorship resources
Learn more about our Childhood Cancer Survivors Program by viewing answers to the most frequently asked questions from parents.
Program Personnel and Phone Numbers For Childhood Cancer Survivor Program
Terry Vik, MD
Ann S. Haddix, RN, MSN, CPNP
Survivor Clinic appointments will be scheduled at Riley Hematology/Oncology at IU Health on the 1st and 4th Wednesday morning of each month. Physicians, Nurse Practitioners and nurses from the Riley Hematology/Oncology at IU Health staff the clinic. Please call or e-mail the nurse coordinator or discuss with your doctor about a referral to this clinic. Even if you are unable to attend Survivor Clinic, Survivor Program services are available by contacting the Nurse Coordinator.
Terry Vik, MD
Dr. Terry Vik is the Medical Director for the Childhood Cancer Survivor Program. He received his undergraduate and medical degrees from Johns Hopkins University. Dr. Vik did postgraduate pediatric training at the University of California, Los Angeles, and a fellowship at the Dana-Farber Cancer Institute and the Children’s Hospital in Boston in Pediatric Hematology/Oncology. Additionally, he was a research fellow at Harvard University. Dr. Vik has been a faculty member of Indiana University School of Medicine and a staff Physician at Riley Hospital for Children at IU Health since 1991. He is a diplomat of the American Board of Pediatrics and the subboard for Riley Hematology/Oncology at IU Health, and is the institution’s Principal Investigator for the federally funded Childhood Cancer Survivor Study. He has been the Director of the Riley Childhood Cancer Survivors Program at Riley at IU Health since its inception in 2001.
Ann S. Haddix, RN, MSN, CPNP
Ann Haddix is the Childhood Cancer Survivor Program coordinator. She received a BA from DePauw University and both undergraduate and graduate nursing degrees from Indiana University. She became a board certified pediatric nurse practitioner in 2003. She has spent her entire nursing career working at Riley at IU Health and finds it particularly rewarding to see patients in the Childhood Cancer Survivor Clinic that she cared for during their active treatment in the hospital. Ann is devoted to providing excellent care for childhood cancer survivors in an environment that provides the best comprehensive subspecialty and referral care for children and young adults in the state of Indiana.