The Cerebral Palsy Clinic at Riley Hospital for Children at Indiana University Health is a multidisciplinary clinic. In the clinic, children and adolescents with cerebral palsy and related disorders receive comprehensive care all in one place.
Many children with cerebral palsy have a mild form of the condition and are able to function quite well. Some have a more severe form of the condition. The Cerebral Palsy Clinic at Riley Hospital for Children at IU Health cares for those patients with more severe cases of cerebral palsy who have complex needs.
FIRST TIME VISIT TO THE CLINIC
Your first visit to our clinic may seem overwhelming. The visit lasts two hours but the child and his or her caregivers are evaluated by the entire team involved in the patient’s care. Most issues are addressed in the same clinic on the same day, so there is no need for multiple appointments or visits.
The team caring for your child includes developmental pediatricians, nurses, pediatric neurologists, pediatric orthopedic surgeons, pediatric dentists and pediatric physiatrists. If needed, your team may also include physical, occupational and speech therapists, dietitians and medical services staff who focus on items like braces, wheelchairs or other adaptive equipment. Augmentative and alternative communication devices (such as eye-gaze controlled communication boards and voice output devices) may also be needed to help the child communicate effectively.
A LIFELINE TO YOUR FAMILY
The children treated at the Cerebral Palsy Clinic at Riley at IU Health require a great deal of care. Some children require tube feeding, some need wheelchairs and some are unable to communicate. Our social workers and other staff work with home healthcare and social service agencies to help families get the help needed to care for their child.
A SOURCE FOR YOUR FAMILY PHYSICIAN
You and your child might only visit the clinic once or twice a year. That’s why our staff focuses on maintaining good communication with your family pediatrician. We offer advice and support to ensure your child and local healthcare providers get the information and resources they need to provide the most informed care possible.
United Cerebral Palsy: Cerebral palsy covers a wide spectrum of disabilities. United Cerebral Palsy helps this group learn to live a life without limits.
Easter Seals Crossroads: Based in Indianapolis, this organization helps families and individuals with disabilities and special needs.
About Special Kids (ASK) of Indiana: ASK describes itself as the place for families and professionals in Indiana to go to “ASK” questions about children with special needs. They provide information and resources on topics like health insurance, special education, community resources and medical homes.
The Arc of Indiana: The Arc of Indiana began in 1956 and was created by parents of children with intellectual and developmental disabilities. Their goal was to build a better and more accepting world for their children. The site provides information about local chapters and events, as well as resources for families.
IN*SOURCE, The Indiana Resource Center for Special Needs: IN*SOURCE provides services to Indiana families with infants, toddlers, children, youth and young adults who have disabilities. Many of the staff and volunteers with this organization are parents of individuals with disabilities.