Waiting for an organ transplant may be one of the most challenging situations your family ever experiences. This period of time is very difficult because it is impossible to predict when an organ will become available. Your child’s future may seem uncertain, and as a parent you may feel helpless, frustrated and emotional. But there are a number of things you and your family can do to not only pass the time, but improve your chances for a successful outcome.

• Keep up with all necessary lab work, tests and immunizations.
• Make sure your transplant team has all your family’s current contact information. We must be able to reach you at any time. Provide us with all phone numbers and the contact information for close friends and relatives.
• Keep your transplant team up-to-date with your current location.
• Inform your transplant team of any changes in your child’s health or your financial situation.
• Keep your child healthy and work to improve their current health. This is vital. An organ transplant has a higher success rate for patients whose overall health has not deteriorated.
• Pack your bags to be prepared to go to the hospital at a moment’s notice. Plan for transportation and lodging, make a list of things to take with you, and be sure to pack an extra 24-hour supply of medications.
• Talk to your child and their transplant team about the situation. This will help put you and your child at ease and relieve stress.