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Specialty Care

IU Health Physicians Rare Liver Disease Program

Important COVID-19 Notice:

If you have an appointment that needs to be rescheduled, an IU Health care team member will contact you with more information. For those appointments that cannot be postponed, options will include virtual visits through IU Health Virtual Visits, visits by phone, as well as in-person visits. If we do not contact you to reschedule, please plan on arriving for your appointment at your scheduled time.

If you do not have an appointment within the next 3 days, we kindly ask that you wait to call your provider’s office until closer to your appointment.

A liver disease is considered rare when less than 200,000 individuals are known to have that condition in the United States. The cause of a rare liver disease is often unexplained with routine examination and standard tests are often inconclusive.

The symptoms associated with a rare liver disease may or may not be similar to other common liver diseases.

The Rare Liver Disease Program at IU Health serves patients with undiagnosed or rare liver diseases by bringing together a team of physicians that include the rare liver disease specialist (a hepatologist) along with other specialists such as neurologists, pathologists, radiologists and genetic counselors.

Prior to your appointment, our physicians will:

  • Work with your physician to obtain all records necessary for your first appointment.
  • Coordinate your visit with other specialists in order to provide a correct diagnosis and to formulate a treatment plan.

At your appointment, you can expect:

  • A simultaneous assessment of liver fat and fibrosis (scarring) to determine the need for a biopsy.
  • The possibility of routine testing with ultrasound, computed tomography (CT) or magnetic resonance imaging (MRI)
  • The possibility of blood testing for genetic mutations for both diagnostic purposes as well as to assess the risk for family members.

Rare Liver Disease Program

The Rare Liver Disease Program at IU Health serves patients with undiagnosed or rare liver diseases by bringing together a team of physicians that include the rare liver disease specialist (a hepatologist) along with other specialists such as neurologists, pathologists, radiologists and genetic counselors.

Prior to your appointment, our physicians will:

  • Work with your physician to obtain all records necessary for your first appointment.
  • Coordinate your visit with other specialists in order to provide a correct diagnosis and to formulate a treatment plan.

At your appointment, you can expect:

  • A simultaneous assessment of liver fat and fibrosis (scarring) to determine the need for a biopsy.
  • The possibility of routine testing with ultrasound, computed tomography (CT) or magnetic resonance imaging (MRI)
  • The possibility of blood testing for genetic mutations for both diagnostic purposes as well as to assess the risk for family members.