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IU Precision Health Consent is a statewide initiative, co-developed by Indiana University School of Medicine and IU Health, to collect blood samples that can be used in research to find better treatments for dreaded diseases of today and the future.
The project is a major component of the Indiana University Grand Challenge Precision Health Initiative. In the future, Precision Health Consent will help improve healthcare through innovation and research, and expand the capabilities of delivering on our promise through individualized patient care.
Every IU Health patient has the opportunity to participate in this effort by donating a blood sample. The goal of the project is to enroll up to 25,000 IU Health patients in 2020 and up to 300,000 over the next five years. By providing a blood sample, participants will be adding their genetic information to the Indiana Biobank, which stores biological specimens for general medical research purposes.
Participation is voluntary, and all medical data is collected and stored with the utmost consideration given to patient privacy and safety. The Indiana Biobank follows the same HIPAA rules as other U.S. healthcare organizations.
All patients who participate will also be automatically enrolled in the All IN for Health program initiative and will receive the All IN for Health newsletter, which provides resources for good health and the opportunity to participate in additional research studies.
There are several participating IU Health locations, where research assistants will ask IU Health patients who are already in the lab for a scheduled blood draw to donate a vile of blood to the Indiana Biobank. Recruiters approach patients who are already in the lab for a scheduled blood draw. If patients choose to participate, the lab collects an extra vile of blood—no additional needle stick is required.
For more information, review these FAQs or find additional details and learn how to participate at IU Precision Health Consent.