Clinical Trials
Clinical trials are research studies in which real people participate as volunteers. These trials help researchers develop new treatments and medications for diseases and conditions.
Cystic Fibrosis
We help you manage this disease so you can live longer and breathe easier
A genetic disease called cystic fibrosis (CF) causes thick mucus to build up in various part of the body, including the lungs and pancreas. The mucus blocks your airways, causing lung damage and making you susceptible to bacterial infections.
Cystic fibrosis is most often discovered in infancy, though sometimes when children grow a little older.
Children with cystic fibrosis show symptoms such as frequent wheezing and coughing, poor growth, greasy stools or diarrhea and frequent lung infections. Physicians use tests such as chest X-rays, pulmonary function tests and mucus cultures to diagnose the condition.
Overview
Children with cystic fibrosis show symptoms such as frequent wheezing and coughing, poor growth, greasy stools or diarrhea and frequent lung infections. Physicians use tests such as chest X-rays, pulmonary function tests and mucus cultures to diagnose the condition.
Our Pulmonology & Respiratory Care at the IU Health Medical Center in Indianapolis is one of only four accredited cystic fibrosis care centers in the state of Indiana. Our physicians conduct cystic fibrosis studies that will give you access to the latest clinical trials and advanced treatments.
Your pulmonologists will provide high quality, comprehensive care to address the many facets of cystic fibrosis and assist you in managing symptoms so you can lead an active lifestyle.
Scientists have not yet discovered a cure for cystic fibrosis, but treatments continue to improve steadily. Managing cystic fibrosis requires a comprehensive treatment plan. Physical therapy, medication to reduce mucus, antibiotics and anti-inflammatory medications can all assist in reducing your symptoms. In addition to seeing a pulmonologist, you may also need to see a gastroenterologist to control and improve digestive problems.
IU Health physicians will give you access to many treatments unavailable anywhere else in the state, including:
- Antibiotics. Your physicians will supply you with the antibiotics you need to manage your risk of bacterial infections.
- Physical therapy
- Respiratory therapy: During respiratory therapy, your ability to breathe will be monitored and improved through various exercises and treatments.
- New medications. Our physicians will assist you in getting access to some of the latest medical innovations in the treatment of cystic fibrosis.
- Lung transplant. IU Health has the only healthcare system in Indiana to offer lung transplants. Lung transplants can help you if you have severely damaged lungs from cystic fibrosis. While this will remove symptoms of cystic fibrosis from the lungs, the disease will continue to affect your sinuses, digestive tract and reproductive tract.
- Access to clinical research trials
Treatment
Our Pulmonology & Respiratory Care at the IU Health Medical Center in Indianapolis is one of only four accredited cystic fibrosis care centers in the state of Indiana. Our physicians conduct cystic fibrosis studies that will give you access to the latest clinical trials and advanced treatments.
Your pulmonologists will provide high quality, comprehensive care to address the many facets of cystic fibrosis and assist you in managing symptoms so you can lead an active lifestyle.
Scientists have not yet discovered a cure for cystic fibrosis, but treatments continue to improve steadily. Managing cystic fibrosis requires a comprehensive treatment plan. Physical therapy, medication to reduce mucus, antibiotics and anti-inflammatory medications can all assist in reducing your symptoms. In addition to seeing a pulmonologist, you may also need to see a gastroenterologist to control and improve digestive problems.
IU Health physicians will give you access to many treatments unavailable anywhere else in the state, including:
- Antibiotics. Your physicians will supply you with the antibiotics you need to manage your risk of bacterial infections.
- Physical therapy
- Respiratory therapy: During respiratory therapy, your ability to breathe will be monitored and improved through various exercises and treatments.
- New medications. Our physicians will assist you in getting access to some of the latest medical innovations in the treatment of cystic fibrosis.
- Lung transplant. IU Health has the only healthcare system in Indiana to offer lung transplants. Lung transplants can help you if you have severely damaged lungs from cystic fibrosis. While this will remove symptoms of cystic fibrosis from the lungs, the disease will continue to affect your sinuses, digestive tract and reproductive tract.
- Access to clinical research trials
Treatments for cystic fibrosis evolve constantly to improve your quality of life and life expectancy. Stay up-to-date on cystic fibrosis through the following websites:
- Cystic Fibrosis Foundation: This website features the latest cystic fibrosis news, information on treatments and support for patients living with cystic fibrosis.
- National Heart, Blood and Lung Institute: This website provides information on treating and living with cystic fibrosis.
Resources
Treatments for cystic fibrosis evolve constantly to improve your quality of life and life expectancy. Stay up-to-date on cystic fibrosis through the following websites:
- Cystic Fibrosis Foundation: This website features the latest cystic fibrosis news, information on treatments and support for patients living with cystic fibrosis.
- National Heart, Blood and Lung Institute: This website provides information on treating and living with cystic fibrosis.
Apr 11
“It was really hard,” says IU Health Arnett nurse Lynzie Primeau, about learning of her son’s cystic fibrosis diagnosis. “We had been home for around 10 days when we received a call from Dr. Criswell (pediatrician Marshall Criswell, MD, FAAP). Luke’s newborn screens flagged for two mutations.” Cystic fibrosis (CF) is a genetic condition that affects a protein in the body. People who have cystic fibrosis have a faulty protein that affects the body's cells, tissues and the glands that make mucus and sweat. CF leads to severe respiratory and digestive problems as well as other complications such as infections and diabetes. “You come up with all kinds of excuses on why the test is not right,” says Primeau. “As a nurse you become hyper-focused on everything with your baby.” Primeau took a break from nursing to focus on Luke, who she describes as the most outgoing, friendly loving and lovable human being. Luke, now a kindergartener, has been fairly healthy, with his major issues being nasal polyps. He has had five sinus surgeries and does a sinus rinse twice a day, which he has figured out how to do on his own. “He loves getting out the really big
Patient Stories for Cystic Fibrosis
Apr 11
“It was really hard,” says IU Health Arnett nurse Lynzie Primeau, about learning of her son’s cystic fibrosis diagnosis. “We had been home for around 10 days when we received a call from Dr. Criswell (pediatrician Marshall Criswell, MD, FAAP). Luke’s newborn screens flagged for two mutations.” Cystic fibrosis (CF) is a genetic condition that affects a protein in the body. People who have cystic fibrosis have a faulty protein that affects the body's cells, tissues and the glands that make mucus and sweat. CF leads to severe respiratory and digestive problems as well as other complications such as infections and diabetes. “You come up with all kinds of excuses on why the test is not right,” says Primeau. “As a nurse you become hyper-focused on everything with your baby.” Primeau took a break from nursing to focus on Luke, who she describes as the most outgoing, friendly loving and lovable human being. Luke, now a kindergartener, has been fairly healthy, with his major issues being nasal polyps. He has had five sinus surgeries and does a sinus rinse twice a day, which he has figured out how to do on his own. “He loves getting out the really big