Huntington Study Group
This organization includes international clinical researchers who seek treatments for those diagnosed with Huntington’s disease.
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Our specialists help patients with this rare disease enjoy life to their fullest ability
Huntington’s disease results in movement difficulties when nerve cells in the brain break down over time. It is a rare disease.
Symptoms arise gradually. They can include changes in walking, mood, personality, memory and thinking.
You inherit Huntington’s disease. Anyone who has it carries an abnormal number of copies of the Huntington gene. If a parent has Huntington's disease, each of his or her children has a 50 percent chance of inheriting the condition.
As more brain cells are lost, symptoms worsen. Symptoms most often appear between the ages of 30 and 50. They worsen slowly over several decades. Involuntary movements can become problematic. Individuals may experience mental challenges. These include changes in thinking and reasoning or feelings of depression and anxiety. Huntington’s disease affects the brain, speech and swallowing.
You inherit Huntington’s disease. Anyone who has it carries an abnormal number of copies of the Huntington gene. If a parent has Huntington's disease, each of his or her children has a 50 percent chance of inheriting the condition.
As more brain cells are lost, symptoms worsen. Symptoms most often appear between the ages of 30 and 50. They worsen slowly over several decades. Involuntary movements can become problematic. Individuals may experience mental challenges. These include changes in thinking and reasoning or feelings of depression and anxiety. Huntington’s disease affects the brain, speech and swallowing.
Our Huntington’s Disease Center of Excellence at the IU Health Neuroscience Center, we have a team of experts from many specialties to care for you. We provide access to clinical trials as well as the latest treatment options. Our research efforts include the National Research Roster for Huntington Disease Patients and Families, which began at Indiana University in 1979. The roster promotes research projects that identify treatments and cures. More than 3,000 families have joined this effort.
The Indiana University Preclinical Neuropsychopharmacology Laboratory studies the neural network dysfunctions of Huntington’s disease to aid in the development of new medicines. This could lead to new therapies that slow the progression of Huntington’s disease or cure it.
The genetic nature of the disease and how it impacts families presents many emotional and interpersonal challenges. For example, as the disease progresses, affected individuals will need to stop working and driving, and rely on family and others for care. We aim to ease symptoms and help establish a plan for care as the disease progresses. We involve patients and families in educational and research opportunities, including an annual symposium with our medical team.
Currently, no cure or treatment to slow the progression of Huntington’s disease exists. However researchers at IU Health and IU School of Medicine continue to make progress towards treatments to slow the disease progression.
Huntington’s disease impacts you and your family in different ways over many years. IU Health neurology experts will guide you and your family toward the best care plans for your condition.
Our Huntington’s Disease Center of Excellence at the IU Health Neuroscience Center, we have a team of experts from many specialties to care for you. We provide access to clinical trials as well as the latest treatment options. Our research efforts include the National Research Roster for Huntington Disease Patients and Families, which began at Indiana University in 1979. The roster promotes research projects that identify treatments and cures. More than 3,000 families have joined this effort.
The Indiana University Preclinical Neuropsychopharmacology Laboratory studies the neural network dysfunctions of Huntington’s disease to aid in the development of new medicines. This could lead to new therapies that slow the progression of Huntington’s disease or cure it.
The genetic nature of the disease and how it impacts families presents many emotional and interpersonal challenges. For example, as the disease progresses, affected individuals will need to stop working and driving, and rely on family and others for care. We aim to ease symptoms and help establish a plan for care as the disease progresses. We involve patients and families in educational and research opportunities, including an annual symposium with our medical team.
Currently, no cure or treatment to slow the progression of Huntington’s disease exists. However researchers at IU Health and IU School of Medicine continue to make progress towards treatments to slow the disease progression.
Huntington’s disease impacts you and your family in different ways over many years. IU Health neurology experts will guide you and your family toward the best care plans for your condition.
This organization includes international clinical researchers who seek treatments for those diagnosed with Huntington’s disease.
This website provides Huntington’s disease research news to patients, written by scientists in easy-to-understand language.
This division of the National Institutes of Health provides patient information about treatments, research and clinical trials.
This service of the U.S. National Library of Medicine offers information and links to additional resources about Huntington’s disease.
This nonprofit offers education, advocacy and research support to find a cure for Huntington’s disease.
This organization includes international clinical researchers who seek treatments for those diagnosed with Huntington’s disease.
This website provides Huntington’s disease research news to patients, written by scientists in easy-to-understand language.
This division of the National Institutes of Health provides patient information about treatments, research and clinical trials.
This service of the U.S. National Library of Medicine offers information and links to additional resources about Huntington’s disease.
This nonprofit offers education, advocacy and research support to find a cure for Huntington’s disease.